By Yantra Bertelli, Visit Amazon's Jennifer Silverman Page, search results, Learn about Author Central, Jennifer Silverman, , Sarah Talbot
The tales during this assortment offer mom and dad of designated wishes young ones with a dose of either laughter and fact. that includes works via so-called substitute mom and dad who've tried to maneuver clear of mainstream proposal, this anthology conscientiously considers the results of elevating youngsters with disabilities. From expert writers to beginner storytellers, together with unique essays by way of Robert Rummel-Hudson, Ayun Halliday, and Kerry Cohen, this collection of actual, shared reports from mom and dad within the understand is a partial antidote to the tales that misrepresent, ridicule, and objectify disabled young ones and their mom and dad.
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Extra info for My Baby Rides the Short Bus: The Unabashedly Human Experience of Raising Kids with Disabilities
The first explosion came almost immediately. “Shut up Mommy! ” “Go to your room, Ben,” I said. ” he shouted. ” this touch of humanity completely breaking any remaining defenses Pam might have had. With tears running down her cheeks and dripping onto the kitchen floor, she handed me the phone and when the doctor came on the line, I told him we were stopping the medicine, Ben was in his room smashing a baseball bat into the floor. This one ended with Pam and me canceling our dinner reservations, giving my mother, who had been planning on babysitting, our theater tickets.
Our respite, our period of having a “normal” baby, was over. We saw the geneticist. She agreed that Frances’ eyes were unusually prominent, and that she was very small. Furthermore her ears were lowset and her anterior fontanel (the one on top) was very large and closing slowly. ” She suspected a craniosynostosis disorder, possibly Crouzon’s or Pfeiffer’s syndrome. The wide-open fontanel gave her pause—craniosynostosis is when the sutures in the skull fuse too early, not leaving the brain room enough to grow.
She says, and I let go a silent exhalation. ” I sink a little deeper into the leather couch. “And then, of course, there are the expectations we put on ourselves. ” My tears now are those of drunken, delirious relief. She has borne witness to our secrets, and for the first time in months, if not years, I feel as if we might survive Ben’s childhood. 19 The Story So Far by Andrea McDowell I am a Type 1 diabetic, so my pregnancy with Frances was rigorously planned. Before we started trying, I got my sugars under control, purchased an insulin pump and learned how to use it, visited all of the specialists to make sure I had no complications or other contraindications to pregnancy, and then it was hats to the wind.